New Balance Online Shop Fundraiser hosted Sunday f

Fundraiser hosted Sunday for teen diagnosed with rare genetic disorder,New Balance Sale

"Only males get it and females are carriers. XLP impacts the immune system,New Balance 670, causing those effected to have compromised immune systems,New Balance Amsterdam," said Angona. "When they are exposed to EBV (mono),New Balance Schoenen Kopen, it can be deadly for them. It causes them to have Burkitt or B cell cancer."

Angona said her son had Stage 2 Burkitt lymphoma when he was 4 years old,New Balance Kids.

"We did not know that Ryan was born with this until November 2011. My dad has XLP and I was a carrier,New Balance M576," said Angona. "We have,New Balance M576, from what I have researched,New Balance Amsterdam, the largest number of males with the disease."

The only cure for the disease is a bone marrow transplant,New Balance 576, according to Angona. She said McMann will be the fifth person in their family to have a transplant.

"My dad and uncle are 66 and 68 years old,New Balance Running, and are the oldest living males with XLP. Most do not live past 10 years old,New Balance Amsterdam," said Angona.

Angona said the problem with getting diagnosed is all the boys look fine. She said they seem to always have respiratory problems,New Balance Amsterdam, are extremely tired and catch everything that they are exposed to,New Balance Schoenen Kopen, but nothing real alarming,New Balance S410, until they get cancer.

"Most doctors do not check IGG levels (immune system levels),New Balance Women, which would have shown just how sick they are,New Balance Sale," Angona said.

Angona is looking to bring awareness to the rare disease,New Balance 373. She said most doctors have never even heard of it,New Balance Hardloopschoenen.

"(University of Michigan) Children's Hospital in Ann Arbor was already researching XLP before my family was diagnosed,New Balance 577, and began seeing the doctors there. There is a 9 year old cousin going through (a) transplant right now,New Balance Hardloopschoenen," said Angona. "When Ryan graduates in June,New Balance Women, he will start the process of transplant right after."

Sunday's fundraiser will cost $20 at the door,New Balance 670, giving each person three games of bowling,New Balance Women, bowling shoes,New Balance Kopen Dames, two slices of pizza and pop. Angona said silent and Chinese auctions,New Balance 670, 50/50 raffles and bake sales will also take place.

A "Be a Match" event held at the fundraiser will also encourage others to join the bone marrow registry list,New Balance Ml574.

"Ryan will be getting his (bone marrow) from the registry list,New Balance M576," said Angona.

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